19 April, 2016

News > New Patient Reported Experience Measure for Sickle Cell Disease: findings report

Results from the first nationwide patient experience survey of people living with sickle cell disease have revealed an urgent need for service improvement. Despite being the UK’s biggest genetic blood disorder, awareness – or rather lack of it, continues to have a significant negative impact on people’s care experiences. Proving detrimental not only to their health, but their quality of life in general and day to day interactions.

Read the findings report on the pilot of the new Patient Reported Experience Measure for Sickle Cell Disease.


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