Picker and the Royal College of Paediatrics and Child Health (RCPCH) are collaborating on a new project to develop two patient feedback surveys to assess patient and parent experiences of childhood diabetes care provision within England and Wales.
These Patient Reported Experience Measures (PREMs) will contribute to the National Paediatric Diabetes Clinical Audit (NPDA) that RCPCH are delivering on behalf of the Healthcare Quality Improvement Partnership.
The development of the paediatric diabetes PREMs will involve focus groups across London, Cardiff and Leeds with children and young people with diabetes and their parents and carers. The participants will discuss their needs, preferences and experiences and help us to understand what is most important to them when receiving care. The qualitative findings, along with additional desk-based research and feedback from other stakeholders such as paediatric endocrinologists, will inform the creation of both PREMs.
Amy Tallett, Head of Research at Picker, commented that “Picker has an international track record in understanding what matters to service users, and translating this knowledge into tools that appropriately and accurately measure people’s experiences of care.”
“We’re also well equipped to develop paediatric patient feedback tools, recognising the importance of consulting children and young people directly about their care experiences, and specialising in designing age-appropriate questionnaires for this population. We’re excited to put our knowledge and expertise towards our work with RCPCH on developing these PREMs.”
Holly Robinson, NPDA Manager at RCPCH, said “We are looking forward to the redevelopment of our PREMs, which have been very successful in previous years with around 7,500 children and young people and their parents completing a survey in 2016.”
“Previous PREM results have shown considerable improvement in experiences of care in paediatric diabetes units, so it’s time to redevelop the surveys to ensure they differentiate unit performance and enable us to encourage care providers to raise the bar still higher.”
Picker and the RCPCH are hoping to pilot the new PREM in Spring 2018.
For more information contact Communications Manager at Picker, Helen Thorne, on helen.thorne@PickerEurope.ac.uk