Yesterday, the Government published its response to the National Data Guardian for Health and Care’s Review of Data Security, Consent and Opt-Outs and the Care Quality Commission’s Review ‘Safe Data, Safe Care’.
Responding to this, Chris Graham, Chief Executive of the Picker Institute, said:
“We strongly support people’s rights to make their own informed decisions about how their personal information is used. We welcome the vast majority of recommendations from the National Data Guardian’s review – so we are pleased that these recommendations have been endorsed.
“We particularly welcome the Government’s acknowledgement of the potential adverse effect of a single opt-out model for consent on patients’ experiences of care – and the impact that this could have on the quality and safety of care.
“Careful consideration is needed to design an approach that both supports people to make informed decisions about their data and facilitates research for the public benefit. We strongly believe that responsible use of patient data can be instrumental in delivering person-centered care, and we welcome the commitment to working with researchers and national stakeholders before implementing a new approach.
“As always, Picker stands both ready to help and keen contribute further to this important discussion; indeed, we have already offered suggestions.”