10 ways to build quality care experiences for and with children, young people and their families
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Everyone has different needs
Children and young people who have multiple conditions, such as cancer patients with learning disabilities, have different needs to general patients and therefore extra thought and focus is required. Care passports, flagging systems, double appointments aren’t rocket science, but the difference they make to a child’s experience is invaluable. They not only support better experiences, but safer care with better outcomes.
During the events, Jim Blair (@jimgblair) Nurse Consultant for people with Learning Disabilities at Great Ormond Street and Frances Binns (@Franbinn) Play Consultant at Royal Manchester Children’s Hospital shared the practical steps they’ve taken to improve care experiences for children and young people with learning disabilities;
“Our young people with Mental Health needs repeatedly tell us ‘help us build our happiness and wellbeing,’ and share that it would really help if more people had mental health first aid training especially in schools as well as across Children’s Services.”
Love this blog Kath – its filled with great examples and resources. 🙂
It’s such a privilege to work with you Alice – we’ve got a lots of young people out there who hold us to account! All 15million of them!
There is a great wonderful array of of ‘shining lights’ here and collectively they deliver a powerful message which is ‘look what is possible, look what is actually happening’, we all have a responsibility to keep up the momentum, to share and learn. Great blog demonstrating the realisation of aspiration, desire and commitment.
And you are indeed a ‘sparkling star’ in community engagement, ensuring that young people flourish and lead communities to better health. The Shropshire Health Champions Programme role models to us all the art of the possible, thank you for all you are doing Karen!
Following the National C&YP Inpatient and Day Case survey results in Portsmouth I wanted to undertake a deeper dive into what young people would like to see improved when in hospital. I am receiving daily information from the hospital information system for all those young people aged 16 to 25 who have been admitted overnight or longer. I then interview as many of these young people during the day as i can. The richness of the conversations around the need to make care more person centred has been very beneficial to feedback to the Chief Executive and our adult colleagues. We are planning to have a big (Trust wide) engagement conservation (LiA methodology) in February 2016 to discuss this feedback and improve care at the bedside. Keys areas where we can make a difference now are improving appropriate activities i.e. Wifi and cheaper TV access (Hospedia) – Wifi is soon to go live, improve communication around discharge processes and set realistic goals and make visiting policies a lot more flexible (what you can do approach), a really exciting opportunity to make a difference. As a result of this practice we will receive daily information of where young people are cared for and provide an Outreach Team to touch base with these patients to see how we can help or support. Adolescent areas or a young adult ward has not been the preference of the young person to date, so will go and visit them in person.
Hi Lesley, thanks so much for sharing the leadership that’s happening in Portsmouth to progress experiences of care. It’s great you’re following up all 16-25 year olds, I was in Whipps Cross the other week & they have commenced this process too, I wonder if it’s spreading across England? Thanks so much for using the feedback of the CYP & family survey, it’s so valued to see their feedback being actioned.