Young boy in hospital bed

Share your experiences of children and young people’s hospital care

Project title: Children and Young People’s Patient Experience Survey 2020
Lead researcher: Hazel Scully at Picker, on behalf of CQC

What are we doing?
Picker, an independent health and social care research charity, has been commissioned by the Care Quality Commission (CQC), to develop a questionnaire to understand and improve patient experiences of children and young people in England. We need some help testing the questions to check they are relevant and easy to understand.

What will this involve?
Picker is holding a series of informal, phone or video interviews with parents/carers, children and young people.
The interviews will last for up to 60 minutes and participants will be given a £40 ‘Love to shop’ or ‘Amazon’ voucher as a thank you. Interviews will be conducted at a time convenient for you during September, October and November 2020.

Who can take part?
We want to speak to parents/carers of children and young people aged 0-15 who have been admitted to hospital in England in the last 6 months. We also want to speak to children and young people aged 8-15 who have been admitted to hospital in England in the last 6 months

How can I take part?
To register your interest to take part please contact us using one of the following methods:

  • Complete the ‘contact us’ form on the right of this web page
  • Email us at volunteer@surveycoordination.com stating ‘Children and young people’s patient experience interview’ in your email.
  • Or call the survey team at Picker on 01865 208127

Do I have to take part?

  • No – participation is voluntary, it is up to you whether or not to take part.
  • You or your child can decide not to take part at any time – even after it has started, without giving a reason.
  • Whether or not you decide to take part will not affect the care you or your child receives now or in the future.

Would my participation in this study be kept confidential?

  • Yes – any information or comments you or your child provides during the call will be kept entirely confidential. Care providers will not know who takes part.
  • No identifying information (such as your name, your child’s name or the names of healthcare staff) will be recorded.
  • You will be asked to sign and complete a consent form that will be used only by researchers to confirm you have agreed to take part.

What will happen to the information that I share?
The information that you or your child share will be used to inform the development of the questionnaire for the Children and Young People’s Patient Experience Survey. The survey will be used by CQC and NHS trusts to understand and improve children and young people’s experience of hospital care.

CQC and Picker comply with the General Data Protection Regulation (GDPR). Picker also complies with the Market Research Society’s (MRS) Code of Conduct by maintaining certifications from the International Standardisation of Organisations. Any sensitive or confidential material is stored securely in line with our data protection policy.

Who is organising the research?
The Care Quality Commission (CQC) is the independent regulator of health and adult social care in England. They make sure that health and social care services provide people with safe, effective, compassionate, high-quality care and they encourage care services to improve. You can find out more about CQC’s work on its website: www.cqc.org.uk.

Contact Details
If you have any questions about the research, before or after the interview please do not hesitate to get in touch with the following contacts at Picker:

Privacy Notice
CQC’s Privacy Notice describes how CQC use personal data and explains how you can contact us and invoke your rights as a data subject.

Picker’s Privacy Notice provides information on who we are, how and why we collect and use personal information, your rights in relation to your personal information and how to contact us and supervisory authorities in the event you have a question or complaint concerning the use of your personal information.

We will process your information in accordance with the requirements of GDPR and the Data Protection Act 2018.

If you have any questions or concerns, please contact the CQC patient surveys team: Patient.Survey@cqc.org.uk

Do you want to understand more about why we test surveys? Read our blog about cognitive interviewing.

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