Journal archive | Picker

Welcome to our research archive. This is a central resource for navigating the academic work and evidence that drives our vision: to achieve the highest quality person centred care for all, always.

This archive brings together a growing collection of past and present publications authored by our expert researchers, analysts, and data scientists, reflecting decades of independent research and thought leadership across the healthcare sector.

The journal articles and publications featured here cover a wide range of topics relating to healthcare quality, patient experience, health inequalities, integrated care, staff experience, patient safety, care coordination, and health system performance. Together, they demonstrate our commitment to robust, evidence-based research that helps healthcare organisations better understand the needs, experiences, and outcomes of patients, service users, carers, and staff.

Our research supports healthcare providers, NHS organisations, policymakers, commissioners, charities, and academic partners by delivering actionable insight that informs strategy, service improvement, policy development, and organisational decision-making.

Explore our collection of journal articles, research papers, and academic collaborations to discover the evidence driving our work and ongoing commitment to advancing person centred healthcare and improving experiences of care.

Journal archive

2026

Huntley, K., Poots, A. J., Gunn, S., Rynne, J., York, N., & Salek, S. (2026). Living with chronic lymphocytic leukaemia: Patient perspectives from a global online cross-sectional survey on care pathways and impacts on quality of life. Frontiers in Hematology, 5. https://doi.org/10.3389/frhem.2026.1794624

Khan, E., Poots, A. J., & Jubraj, B. (2026). Nursing Students’ Understanding of Terms and Concepts Around Medication Review, Polypharmacy, and Deprescribing: A Cross-Sectional Survey Study. Nursing & Health Sciences, 28(1), e70291. https://doi.org/10.1111/nhs.70291

Nier, S., Poots, A. J., Gunn, S., Oliva, E. N., Ionova, T., & Salek, S. (2026). Relationships Between Clinician-Patient Communication and the Quality of Life of Patients With Leukaemia: A Prospective Cross-Sectional Global Study. Cancer Control, 33, 10732748261433287. https://doi.org/10.1177/10732748261433287

Healy D, Gilmore J, King J et al. Exploring how health inequalities are conceptualised and measured in patient experience surveys in acute care: a protocol for a scoping review. HRB Open Res 2026, 7:74 (https://doi.org/10.12688/hrbopenres.13998.3)

2025

King, J., Killpack, C. (2025). Patient experience surveys for endometriosis care: A scoping review.

Graham, C., King, J., Lerway, C., & Poots, A. J. (2025). All the voices we cannot hear: a taxonomy of why some populations’ experiences are missing from health and care quality evidence and the Toolkit for Assessing Under Representation in User Surveys (TAURUS).

Lalani, M., Peters, M., Sugavanam, T., Crocker, H., Caiels, J., Hay, H., Gunn, S., Hogan, H., Page, B., & Fitzpatrick, R. (2025). New Ways of Working to Manage and Improve Quality in Integrated Care Systems in England.

Crocker, H., Cromwell, D. A., Modha, S., Gray, A. M., Graham, C., Thana, L., Fitzpatrick, R., Vincent, C., Hogan, H., & Peters, M. (2025). Patient-reported harm from NHS treatment or care, or the lack of access to care: a cross-sectional survey of general population prevalence, impact and responses.

Hay, H., Tallett, A., Aeddi, B., Corbett, B., Donovan, C., Blewitt, J., & Abad Madroñero, J. (2025). Understanding the Care Experiences and Support Needs of UK Adults Treated in Hospital for Meningitis.

King, J., Davidson, C., Wade, H., & Graham, C. (2025). A Systematic Review of the Literature on the Validity, Reliability, and Utility of the NHS Friends and Family Test as a Method for Gathering Feedback on and Improving the Experiences of Patients. Patient Experience Journal, 12(3), 173–195. https://doi.org/10.35680/2372-0247.2049

Graham, C., & Coulter, A. (2025). Transparency, voice, and choice: Patients must lead on the path to quality improvement in the NHS. BMJ, 390, r1949. https://doi.org/10.1136/bmj.r1949

Graham C. To restore public confidence in the NHS, the health service must ease the pain of waiting BMJ 2025; 389 :r775 doi:10.1136/bmj.r775

2024

Kozlowska, O., Tallett, A., Bond, S., Mansbridge, S. E., Aveyard, H., Jenkinson, C., Dudbridge, A., McRobert, N., Lumb, A., Rea, R., Tan, G. D., & Walthall, H. (2024). Developing and exploring the validity of a patient reported experience measure for adult inpatient diabetes care.

Healy, D., Gilmore, J., King, J., McSharry, J., Meade, O., Ní Shé, É., Sweeney, L., Foley, C., & Noone, C. (2024). Exploring how health inequalities are conceptualised and measured in patient experience surveys in acute care: a protocol for a scoping review.

Perros, P., Nagy, E. V., Papini, E., Abad-Madroñero, J., Lakwijk, P., Poots, A. J., Mols, F., & Hegedüs, L. (2024). Hypothyroidism and Type D Personality: Results From E-MPATHY, a Cross-sectional International Online Patient Survey.

2023

Lalani, M., Sugavanam, P., Caiels, J., Crocker, H., Gunn, S., Hay, H., Hogan, H., Page, B., Peters, M., & Fitzpatrick, R. (2023). Assessing progress in managing and improving quality in nascent integrated care systems in England.

Perros, P., Nagy, E., Papini, E., Van der Feltz-Cornelis, C., Weetman, A., Hay, H., Abad-Madronero, J., Tallett, A., Bilas, M., Lakwijk, P., Poots, A. J., & Hegedus, L. (2023). Hypothyroidism and Somatization: Results from E-Mode Patient Self-Assessment of Thyroid Therapy, a Cross-Sectional, International Online Patient Survey.

Sakonidou, S., Kotzamanis, S., Tallett, A., Poots, A. J., Modi, N., Bell, D., & Gale, C. (2023). Parents’ Experiences of Communication in Neonatal Care (PEC): a neonatal survey refined for real-time parent feedback.

Wong, E. L.-y., Wang, K., Cheung, A. W.-l., Graham, C., & Yeoh, E.-k. (2023). Thinking beyond the virus: perspective of patients on the quality of hospital care before and during the COVID-19 pandemic.

2022

Tallett, A. J., Bilas, M., Lakwijk, P., & Poots, A. J. (2022). The Impact of Hypothyroidism on Satisfaction with Care and Treatment and Everyday Living: Results from E-Mode Patient Self-Assessment of Thyroid Therapy, a Cross-Sectional, International Online Patient Survey.

2021

Gooden, T., Wright, A., Swinn, E., & Sizmur, S. (2021). Optimising response rates in a national postal survey evaluating community mental health care: four interventions trialled.

Ainley, E., Witwicki, C., Tallett, A., & Graham, C. (2021). Using Twitter Comments to Understand People’s Experiences of UK Health Care During the COVID-19 Pandemic: Thematic and Sentiment Analysis.

2020

Tallett, A., Poots, A. J., Graham, C., Peters, M., Corbett, R., Sizmur, S., & Forder, J. (2020). How can patient experience scores be used to predict quality inspection ratings? A retrospective cross-sectional study of national primary care datasets in the UK.

Locock, L., Montgomery, C., Parkin, S., Chrisholm, A., Bostock, J., Dopson, S., Gager, M., Gibbons, E., Graham, C., King, J., Martin, A., Powell, J., & Ziebland, S. (2020). How do frontline staff use patient experience data for service improvement? Findings from an ethnographic case study evaluation.

Santana, M.-J., Manalili, K., Zelinsky, S., Brien, S., Gibbons, E., King, J., Frank, L., Wallstrom, S., Fairie, P., Leeb, K., Quan, H., & Sawatzky, R. (2020). Improving the quality of person-centred healthcare from the patient perspective: development of person-centred quality indicators.

Burger, S.A., Poots, A. J., Perris, A., Crump, H., Thorne, H., Hughes, S., & West, J. (2020). Living with cardiovascular disease: Exploring the biggest challenges for people affected by CVD in the UK, and their use (or not) of online resources.

Graham, C., & Sizmur, S. (2020). Psychometric evaluation of patient-reported experience measures: is it valid?

Roycroft, M., Abad-Madronero, J., Cochrane, C., Poots, A. J., Novak, M., Tallett, A., Burger, S.-A., & FitzPatrick, M. (2020). ‘This is my vocation; is it worth it?’ Why do core medical trainees break from training?

Soong, J. T. Y., Rolph, G., Poots, A. J., & Bell, D. (2020). Validating a methodology to measure frailty syndromes at hospital level utilising administrative data.

2019

Watson, E. K., Brett, J., Hay, H., Witwicki, C., Perris, A., Poots, A. J., Sizmur, S., Soonawalla, Z., & Tallett, A. (2019). Experiences and supportive care needs of UK patients with pancreatic cancer: a cross-sectional questionnaire survey.

Marshall, C., Zambeaux, A., Ainley, E., McNally, D., King, J., Wolfenden, L., & Lee, H. (2019). NHS England Always Events® program: Developing a national model for co-production.

2018

Ainley, E., King, J., Kasbauer, S., & Cooper, R. (2018). A framework analysis of free-text data from the neonatal survey 2014.

Graham, C., Kasbauer, S., Cooper, R., King, J., Sizmur, S., Jenkinson, C., & Kelly, L. (2018). An evaluation of a near real-time survey for improving patients’ experiences of the relational aspects of care: a mixed-methods evaluation.

Hargreaves, D. S., Sizmur, S., Pitchforth, J., Tallett, A., Toomey, S. L., Hopwood, B., Schuster, M. A., & Viner, R. M. (2018). Children and young people’s versus parents’ responses in an English national inpatient survey.

Chakravorty, S., Tallett, A., Witwicki, C., Hay, H., Mkandawire, C., Ogundipe, A., Ojeer, P., Whitaker, A., Thompson, J., Sizmur, S., Sathyamoorthy, G., & Warner, J. O. (2018). Patient-reported experience measure in sickle cell disease.

Sizmur, S., & Firona, R. (2018). Testing interventions to improve response to a National Health Service Staff Survey.

Joober, H., Chouinard, M.-C., King, J., Lambert, M., Hudon, É., & Hudon, C. (2018). The Patient Experience of Integrated Care Scale: A Validation Study among Patients with Chronic Conditions Seen in Primary Care.

Kelly, L., Sizmur, S., King, J., Cooper, R., Jenkinson, C., & Graham, C. (2018). The Relational Aspects of Care Questionnaire: item reduction and scoring using inpatient and accident and emergency data in England.

2017

Kasbauer, S., Cooper, R., Kelly, L., & King, J. (2017). Barriers and facilitators of a near real-time feedback approach for measuring patient experiences of hospital care.

Crump, H., King, J., Graham, C., Thorlby, R., Raleigh, V., Redding, D., & Goodwin, N. (2017). Developing a User Reported Measure of Care Co-ordination.

Cooper, R., Kaesbauer, S., Ainley, E., & Tallett, A. (2017). Thematic Analysis of Free-Text Comments Provided in a Compassionate Care Questionnaire.

2016

Gibbons, E. J., Graham, C., King, J., Flott, K., & Jenkinson, C. (2016). Developing approaches to the collection and use of evidence of patient experience below the level of national surveys.

Graham, C. (2016). Incidence and impact of proxy response in measuring patient experience: secondary analysis of a large postal survey using propensity score matching.

Gore, C., Griffin, R., Rothenberg, T., Tallett, A., Hopwood, B., Sizmur, S., O’Keeffe, C., & Warner, J. O. (2016). New patient-reported experience measure for children with allergic disease: development, validation and results from integrated care.

2015

Raleigh, V., Sizmur, S., Tian, Y., & Thompson, J. (2015). Impact of case-mix on comparisons of patient-reported experience in NHS acute hospital trusts in England.

Graham, C., & Sizmur, S. (2015). Influence of patients’ age and sex and the mode of administration on results from the NHS Friends and Family Test of patient experience.

King, J., Tallett, A., & Burger, S.-A. (2015). Parents’ experiences of neonatal care in England.

Graham, C. (2015). Strategies and challenges for monitoring patient experience at the local level.

2014

Graham, C., Skew, A., Hewitson, P., Jenkinson, C., & Coulter, A. (2014). People with limiting long-term conditions report poorer experiences and more problems with hospital care.

Beresford, B., & Stuttard, L. (2014). Young adults as users of adult healthcare: experiences of young adults with complex or life-limiting conditions.

2013

Tallett, A. (2013). Children’s feedback can help improve healthcare provision.

2012

Hargreaves, D. S., Sizmur, S., & Viner, R. M. (2012). Do young and older adults have different health care priorities? Evidence from a national survey of English inpatients.

Graham, C., Bos, N., Sizmur, S., & Van Stel, H. F. (2012). The accident and emergency department questionnaire: a measure for patients’ experiences in the accident and emergency department.

2011

Tallett, A., & Hopwood, B. (2011). Little voice: giving young patients a say.

Photograph: Person in a blue shirt using a tablet, finger tapping the screen.

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